Tuesday, March 26, 2013

Just dropped in to see what condition my condition was in

Last week was crazy. 
But it did reaffirm me that there is a Willie Nelson song for every significant thing that 
happens in my life.

On Tuesday I had an appointment at my OBGYN's.
I had done a routine blood work-up the day before. Anyways when 
my doctor came in he was all grim looking. 

Our conversation went a little like this:
The first thing he said to me was, "I've made an appointment for tomorrow for you with Monterey's best blood and cancer specialist. Is that okay with you?"
My response, "what? why?!"
"You need to meet tomorrow with a hematologist." 
"Why? I'm confused are you saying I need to have the baby tomorrow?
"No you have a condition called Idiopathic thrombocytopenic purura."
"What?!"
"Your blood platelets are dangerously low"
"What? (my mind immediately goes to worse case scenario) My friend,
she had low platelets and it was cancer, it was leukemia!"
"It on the table"
"What?! I don't understand? Do I have Cancer?"
"What you have is very dangerous. But you can just go about your day as of it 
was normal." 
"What? I don't understand!"
"Go about your normal day, just don't cut yourself, fall down, bump into
anything, get a bruise. But yeah you can do what ever you normally do."
"I'm so confused! Whats happening to me? Can I take my
daughter to the park? Can I go for walk? Can I play basketball with my husband?"
"I feel like your not listening to me. You have Idiopathic thrombocytopenic purura."
"What is that?! I am so confused?!"

Basically it was the worst combination ever.
An extremely hormonal lady, who is thinking she is being told she is dying and a doctor who is annoyed that the said lady is asking so many questions.
I spent the next 24 hours calling family, googling, having them google and arranging my impending death.

The next day my friend watched Ha Jyn for us and Boo took time off of work to go to my appointment with me. The first thing the blood and cancer specialist said to me was, "this is NOT cancer." I told him that my OBGYN had said it was, "On the table"
The specialist rolled his eyes and said, "That's your Doctor being political! Your chances
of having cancer are the same as everyone else."

At this point my heart rate started to beat normally for the first time in 24 hours.
The specialist was great and answered literally a list of 30 questions my family and I came up with.
He explained to me that the average person has  around 450K platelets and that my test the past had shown low around 114k, which is low but can be expected in pregnancy. But that what was worrisome is that on my most recent test, I only had 26k platelets. He explained all the new blood tests he wanted to conduct and all the possibilities of what could happen.

After the appointment Boo and I went to a lab to get more blood tests done. Even at that point I was feeling much better because the specialist had really been so great about talking over all the potential outcomes. 

The next morning the specialist himself called me. He said that I do have Idiopathic thrombocytopenic purura (ITP),  and will have to take steroids until the baby is born.
He said I also have a condition that 1% of people with ITP have. Basically my blood clumps right after it is taken out of my body. So the longer my blood test sat around untested, the more my platelets group together and the lower number it showed on the tests. Out of all the outcomes the Dr. had explained this was the very best. No emergency c-section, so transfusions, no cancer! 
Basically my condition should improve right after I have the baby.

I am so happy it is what it is and not something worse! 

Leila and I having a, "I'm not dying" celebration pizza. 
I don't know what I would do without her! 
She is going to watch Ha Jyn when MynJune comes. 

Today at the beach. It was a gorgeous day for a bunny cookie and a 
walk on the beach. 

Yesterday Ha Jyn was my mini mouse/lady bug super hero.
She protected me from monsters with her pink magic sword.
I felt VERY protected! 




2 comments:

Robyn said...

Cat, I am so glad to hear that you are not dying, and that you have a great friend to help celebrate! What kind of doctor do you have?!! Jeesh, did he not answer your questions, because he didn't really know the answers, or because he doesn't have good people skills? I'm just glad that you didn't have to wait too long to see someone who really knew what was going on. Hope everything else goes smoothly for you in the next few weeks.

Anonymous said...

WOW! What a crazy doctor! Reminds me of the doctor from Arrested Development. Maybe you should look around for one who has better communication skills? Sheesh. Glad you're okay and not dying.